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Patient Reported Outcome Measures (PROMs)

We collect information from patients undergoing hip replacement, knee replacement, varicose vein, and groin hernia surgery in England based on their responses to questionnaires before and after surgery. The questionnaires measure the effectiveness of care and health gain as assessed by the patient themselves.

This information adds another dimension to the wealth of information available on the care delivered to NHS-funded patients on the quality of services.

Since 1 April 2009, hospitals providing hip replacement, knee replacement, varicose vein and groin hernia surgery have been inviting patients to complete questionnaires before and after their surgery. Patients are invited to complete the survey and give their consent for the information to be used to produce statistics about the quality of healthcare services offered by different hospitals across the NHS. The results of the questionnaires may also be shared with the health professionals who have been involved in the care of the patient. Patients can also choose not to allow the information from their questionnaire to be shared with the team involved in their care. They can also choose to opt out at any stage even if they have already completed questionnaires in the past.

What we collect

The type of information collected includes:

Information about the individual:

  • NHS number
  • Postcode
  • Date of birth
  • Gender
  • Living arrangements (e.g. with spouse/partner/family/friends, alone, nursing home/hospital/long-term care home or other arrangement)

We delete the NHS Number, postcode, and date of birth from the questionnaire information after two years. This is what is agreed as part of patients giving their consent when completing the questionnaire.

Information about health and impact on daily living:

  • Self-rating of health.
  • Levels of pain, mobility, anxiety and self-care.
  • Impact on looking after yourself and daily living tasks (such as getting dressed, getting about, doing household shopping)
  • Length of time problems experienced
  • Previous surgery
  • Other health conditions

The information about the individual such as NHS number, date of birth, and gender is used to link to information from the questionnaires with clinical information routinely collected from hospitals.

How the information is used

The information that is collected is analysed by the HSCIC to provide statistical reports.

Organisations can also make an application to us to receive this information or to receive it linked to hospital information. They must follow our application process, and must clearly demonstrate that their request is being made to support the provision of health and social care and the promotion of health. Data cannot be released for solely commercial purposes.

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