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New figures released on the information choices of patients

New figures today show the number of patients that have opted out of sharing their care information outside the Health and Social Care Information Centre (HSCIC) for purposes other than their direct care2.

Care Information Choices, England Monthly official Statistics, April 2016 is based on data from GP practices in England as at April 2016.

Presented to Clinical Commissioning Group (CCG) level, the figures relate to both the number and rate of opt-outs (known as 'type 2' opt-outs3) registered by patients.

The full report, which is classed as experimental4 can be viewed at: http://www.hscic.gov.uk/pubs/careinfochoicesapr16.

ENDS


Notes to editors


1. The Health and Social Care Information Centre (HSCIC) was established on April 1 2013 as an Executive Non Departmental Public Body (ENDPB). It is England's trusted data source, delivering high quality information and IT systems to drive better patient services, care and outcomes. Its work includes publishing more than 260 statistical publications annually; providing a range of specialist data services; managing informatics projects and programmes and developing and assuring national systems against appropriate contractual, clinical safety and information standards.
2. A Type 2 opt-out is intended to prevent any identifiable information leaving HSCIC for purposes beyond direct care. The HSCIC will not apply the opt-out in any situation where it could affect a patient's direct care, for instance for screening. The opt-outs will be applied where data is released to support non-direct care, such as research into cancer treatments.
3. Since early 2014 patients have been able to register two types of opt-out with their GP practice in order to express preferences about the way their personal confidential information should be used for purposes beyond their direct care. These have been more commonly known as 'type 1' and 'type 2' opt-outs.
4. "Experimental statistics" are new official statistics that are undergoing evaluation. A key part of the "experimental statistics" label is user engagement in the evaluation of those statistics. The HSCIC invites readers to comment on this publication, which will help inform the next report. Comments may be sent to enquiries@hscic.gov.uk.
5. For further information about how information is safeguarded and securely shared for health purposes please visit: http://www.hscic.gov.uk/patientconf
6. For media enquires please contact media@hscic.gov.uk or telephone 0300 30 33 888.

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