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Recorded Dementia Diagnoses

The Department of Health (DH), on behalf of the Secretary of State for Health and NHS England, has directed the NHS Digital to establish a data collection in order to receive specific dementia diagnosis data. These data support the Prime Minister's challenge on dementia 2020, which aims to improve the national diagnosis rate of dementia.

For each GP practice included in this data collection, NHS Digital receives a count of the number of patients with a dementia diagnosis in their clinical record, as defined by the QOF Dementia business rules, broken down by age and gender, as well as a count of the total number of registered patients at the GP practice. No personal identifiable data are included in this data collection.

These data inform the publication Patients in England with a record of dementia diagnosis on their clinical record, which reports the monthly recorded prevalence of dementia. The data for 2015-16, 2016-17 and 2017 - 18 are available below:

    

2017-18 QOF Recorded Dementia Diagnoses data collection

2016-17 QOF Recorded Dementia Diagnoses data collection

2015-16 QOF Recorded Dementia Diagnoses data collection


The Direction issued to the NHS Digital for the legal collection of these data is available on the gov.uk website. The two documents that were embedded in this direction are available here:

pdf icon NIC-329437-L9M3C_dementia_prevalence [415kb]

pdf icon QOF_Monthly_Prevalence_Spec_1516_v1.1 [397kb]

This Direction was put in place for the 2015-16 QOF Recorded Dementia Diagnoses data collection but it also applies to the equivalent 2016-17 data collection. This is due to the 2016-17 data collection continuing unchanged (except for the necessary dates changes) from 2015-16.

Both the 2015-16 and 2016-17 Recorded Dementia Diagnoses data collections were accepted by the Standardisation Committee for Care Information (SCCI), which oversees the development, assurance and approval of information standards, data collections and data extractions. A Data Provision Notice was also issued to general practices in England (i.e. the providers of the required data) for both the 2015-16 and 2016-17 data collections. Links to the appropriate documents are provided below:

Amendment to 2016-17 Recorded Dementia Diagnoses data collection

From January 2017 onwards an amendment was made to the collection. This data collection was accepted at the SCCI meeting on 27 July 2016 - papers from this meeting can be found on the SCCI Secretariat Dashboard. Also see the Information Standards Notice and Primary Care Data Application Form for this data collection. The Data Provision Notice for this data collection is available on the gov.uk website and the technical specification is available here:

pdf icon 2016-17 QOF Recorded Dementia Diagnoses Technical Specification v2.1 [801kb]

This technical specification supersedes the v2.0 technical specification for the 2016-17 Recorded Dementia Diagnoses data collection. This collection uses v35.0 of the QOF Dementia business rules.

2016-17 Recorded Dementia Diagnoses data collection

This data collection was accepted at the SCCI meeting on 24 February 2016 - papers from this meeting can be found on the SCCI Secretariat Dashboard. Also see the Information Standards Notice and Primary Care Data Application Form for this data collection. The Data Provision Notice for this data collection is available on the gov.uk website and the technical specification is available here:

This technical specification supersedes the v1.1 technical specification for the 2015-16 Recorded Dementia Diagnoses data collection. This collection uses v32.0 of the QOF Dementia business rules.

2015-16 Recorded Dementia Diagnoses data collection

This data collection was accepted at the SCCI meeting on 24 June 2015 - papers from this meeting can be found on the SCCI Secretariat Dashboard. The Data Provision Notice for this data collection is available on the gov.uk website.

This collection uses v32.0 of the QOF Dementia business rules.


Further resources

The below HSCIC publications also contain some information about Dementia:

PLACE 2015 (focussing on non-clinical dementia data)

Mental Health and Learning Disabilities Data Set

National Dementia and Antipsychotic Prescribing Audit

General Dementia landing page with links to some of the above plus QOF

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